As you all know I have Frontal lobe epilepsy, I recently figured out that my epilepsy is Catamenial in nature. Catamenial epilepsy is when a woman experiences an increase in seizure activity around her menstrual cycle or different phases of the cycle. For me it’s the beginning phase. It’s crucial for everyone with epilepsy to create a seizure log. I cannot stress this enough. Seizure activity triggers are better identified through doing this. My neurologist and I were able to clearly see this through knowing when my cycles are, seeing when the seizure activity was and even tracking the changes in my mood based off of that. Now I can even anticipate seizure activity. I have drop attack seizures so it’s good to be home and remain safe on some of those more dangerous days.
What the Doctor Ordered for me: Presently I take a diuretic 3 days before my cycle and stop day 1 of my period. As a woman gets closer to her period, you begin to hold fluid. Think bloating etc. Blood volume levels rise, this effects the blood level of the seizure medications you are taking. The diuretic helps manage a stable blood level of your drugs. Please remember to stay well hydrated during this time and take your diuretic in the morning otherwise you’ll be up all night urinating. Even when I take it in the morning it still disturbs my sleep somewhat with the urinating factor. I’ve only been on the diuretic for two cycles now. I’ve seen huge positive changes in PMS and huge stabilization in mood and literally no mood swings however I still had a considerable amount of seizure activity. I did gain so much comfort from not having the mood swings and better sleep that I am willing to continue a few more months on the diuretic to see how it goes, as this is not harmful. I also started the diuretic prior to major med increases so now that medications have been increased perhaps it will all work together perfectly. My neurologist also increased my Topiramate from 200mg all the way to 300mg in two months ( don’t worry I have gone all the way up to 400mg before my body tolerates medication increases well and I am a nurse, I do med increases safely. We found I have extreme depression on Topriamate at levels above 250mg so we decided to stay at 250mg of Topiramate extended release daily for now. I started a new medication called Briviact 50mg daily and I am feeling great on that.
Other Neurologists I have read on online forums that different neurologist have been known to prescribe their patients benzodiazepines ( a classification of drugs having a sedative effect reducing anxiety or seizure activity) during the “phase” in which their patient experiences Catamenial epilepsy. However I personally would not recommend it as these drugs are highly addictive in nature and don’t have an easy on and off quality to them. My neurologist is an Epitologist meaning she specializes in the care of epilepsy as well as having a Phd in Behavioral health. I am not saying that is wrong treatment, it may work really well for others and it could work well for you. Explore all options and ask of course!
Personal changes I made: I switched CBD oil companies. I know in the past I heavily endorsed the company My Soul CBD. I still believe they were beneficial for me as long as they had worked but at some point their oil stopped working for me personally. Even on an increase and I went all the way up to taking 100mg daily. It was no longer helping me for anxiety or seizure activity. I switched to Koi Naturals CBD. I started with a 500mg bottle which is tested for purity and quality it’s 17mg of CBD isolate per 1ml and THC free. It’s much more affordable for me at 60.00- 99.99 a bottle compared to My Soul CBD 65.00 – 149.99 a bottle. They ship right away and there is free shipping as well. For the 4th of July I was able to get their 1000mg bottle that is more heavily weighted at 34mg per 1ml at only 74.99! and free shipping. It’s been so effective for me I have been able to take a range of anywhere between 34mg and 50mg of CBD per day. My Fibromyalgia pain level has been managed anywhere between a 0- 5 on a 0-10 scale which is overall very amazing. I’ve been back to my yoga practice daily and practicing my arm balances again!
I am also
using some natural hormone therapy. Wild yam oil from a brand called Progestelle.
I cured myself of Poly Cystic Ovary Syndrome without using hormonal birth
control through this system and doing liver cleanses years ago. I no longer
have PCOS and at one point in my life. (The struggle began at 17 and ended at
about 21) I had over thousands of cysts on both ovaries. So this actually works.
I have a pituitary adenoma which is a small tumor
located on the pituitary a gland on the brain is responsible for secreting the
bodies hormones. The hormones were
recently tested and apparently everything was fine but I know my body and given
some of my symptoms. I am holding some weight since I had my daughter
regardless of activity level and great diet. I have hair loss and some other
things that lead me to believe I have an over production of estrogen in my
system. Progesterone has an anticonvulsant effect on the body. I know this an a
little light turned on in my head. I knew I had to start this therapy or at
least try and see how my body reacted to giving it doses of progesterone. It
couldn’t hurt. It would be equivalent to hormonal birth control without
estrogen and harmful side effects or tremendous weight gain. Remember that the
skin the bodies largest organ. It soaks in everything you put on it. Ladies they really get us with the “pink
products” the toxic chemicals from the top of our heads down to our toe nails
literally. That’s for another day.
I am removing all Xenoestrogens from my
household products once again. I don’t use heavy chemical products. Everything
I use is organic or natural with the exception of a few minor products here and
there. I went out and bought unscented soaps. I am using just magnesium spray
as a deodorant for now. Even though I was using EOS natural deodorant it was Lavender
based. Many essential oil products like Rosemary, Lavender and Tea tree oil are
xenoestrogens chemical compounds that encourage the body to produce excess
estrogen. I’ll include some information on those things. I am following the
guide that is included with the oil that I purchased. I am following the
recommendations for Restless leg syndrome. While I do not have that condition, it’s
the only neurological based condition stated in their literature. So I decided to follow that recommendation. I
noticed a body fat reduction. My face is becoming narrower once again and my
hips, the fat stores from breast feeding are coming off. I haven’t lost any “weight”
but I have gotten a few comments from friends asking if I have. So that feels
I have a personal disclaimer about the Progestelle company I do not support any of their personal non-medical beliefs or statements. I do like their product. I just want to make it very clear to you all. They are a bit like Dr. Bronner’s you buy the product because you like it, not because you agree with the statements.
Well that’s it for now guys! I made allot of changes and things are working. Word Press updated their website, while I am loving it. I am having a hard time navigating it and taking part in my usual lay out of blogging.
Anxiety definition : a feeling of worry or fear, typically about an imminent event or something with an unknown outcome. Other words to describe anxiety would be panic, agitation, tension, stress, suspense, fear, nervousness, and angst.
Anxiety increases when you begin to physically feel it’s blow, the chest pain, the headaches, maybe shortness of breath, nausea, cold sweats, eye twitches, stammering, forgetfulness, irritable bowel symptoms, inability to perform in regular activities and feeling intense fear.
The DSM- 5 a psychiatric diagnostic tool. It uses specific criteria and rules for diagnosing anxiety. It states that a generalized anxiety disorder is excessive worry or fear occurring more days than not, over a 6 month period that involves a number of events or daily activities such as work, school performance, socialization etc.
“Now is the age of anxiety.” – W. H. Auden.
What causes Anxiety?
Life is a beautiful gift. We are all here breathing but we don’t intentionally use those breaths. Much like breathing, experiencing anxiety is apart of life. Life comes with many changes through out the years and some of those changes can leave us feeling a bit unsettled. Change of course will come with some natural anxiety. Even good things come with a small amount of anxiety from time to time. For some people there is no true root cause of anxiety, they are born anxious. For others anxiety has many causes. Some very logical relevant causes to anxiety can be relationships, work stress, school performance, health conditions, traumatic life events, raising a family, and poverty. These things can weigh heavily on a person and rightly so. Often anxiety and depression accompany one another, playing an ugly game in a person’s mind. Anxiety is often known to run in families. If your family members tend to get anxious easily you may be more likely to be so yourself, it makes sense too because a lot of our behaviors in life are learned from our family. Drugs and alcohol abuse can cause anxiety. Withdrawal from anti-anxiety medications can cause anxiety. Social media can cause anxiety, comparing yourself to others and not having what other people have can lead to you feeling anxious about your life. The Depression and Anxiety Association of America produced an article about how much social media effects a persons mental health and anxiety levels it’s pretty astounding article.
Can I get better?
We can always better ourselves it’s one of our best human traits. When we put our mind to something we can achieve it! You will get better! Seeking the right treatment and making the right steps and starting immediately is crucial in your success for treating anxiety. Don’t allow it to build up. Recognize the warning signs of stress in your body. Are your shoulders tight? Are you getting tension headaches frequently? Are you having digestive problems? How are you sleeping? Are you feeling anxious? Are you feeling overwhelmed? What are you doing for self-care? What are you doing for mental health breaks daily? You can get better you just need to begin. Do not stop trying once you get started. That leaves you with the question we all ask, where do I start?
Where do I start?
Step one: You need to begin breathing. When you find yourself in an overwhelming state of mind. Find intentional breath, not even meditation at this point. Just focus on the in and out of your breath. Tell yourself ” I am breathing in, I am breathing out”. Close your eyes if you are in an area you can do so. Start there. Simply be for a moment. Check in with yourself. Ask yourself 1. How do I feel in this moment? Get used to being in the present moment. Lots of times anxiety comes from living in the future. Our thoughts are not in the present. We are concerned about what may occur in the upcoming moments, months, weeks, years in the future etc.
Step two: Daily movement. You may have a job or school schedule that takes up a good portion of your day. Your mind is tired but your body is not necessary tired. There is stagnant energy that is surrounding you. It’s fueling your anxiety. Daily movement will improve your health by calming the mind, lowering the blood pressure and improving focus, if you are doing activities outdoor you will be getting vitamin D which is a great natural source of happiness and mood boosting qualities.
Yoga : Take a class either at a yoga studio, gym, online, or on the TV ( amazon prime has some great teachers) Audible app also has guided classes that are great! Even a few moments will give you benefits.
Walking: Getting out doors for a brisk walk daily will help you clear your mind. Even walking on a tread mill and taking that time to listen to a positive podcast or active meditation/intention setting podcast is a great way to not only improve you mood but work on yourself mentally. If you are walking outdoors maybe bringing a friend to vent to about life and share your stories with while simultaneously getting fit together!
Martial arts: The practice of self-control through movement and energy release! A perfect combination for some one who has anxiety and perhaps some anger issues as well. (No you don’t learn martial arts to go beat people up.) It’s about learning an art form and releasing energy through a practice of self-control and respect for others. Karate, Tai chi, MMA, Ji Jistu etc.
Running: I am sure everyone has heard of a runners high. Running boosts endorphins. Running is something you can set either pace goals or distance goals for yourself. You can use apps like Nike Training Run app that tracks you distance and has free coaches that inspire you and give you positive pep talks along your route as you run your specific distances and a paces! Running is great for the anxiety/depression combination. Great for the goal setter personality!
Weight lifting: Lifting weights either by following specific training guide lines by in app purchases like BBG, or doing your own thing in the gym, preparing to compete in body building competitions, crossfit or powerlifting. Weight lifting can be very therapeutic for people as they refocus their energy to specific goals they set for themselves.
Zumba: Dancing is a great way to get out there move your body and raise your endorphins, relief anxiety, reduce your blood pressure and get a great fat blasting full body workout in at the same time while having a ton of fun. Studios, Martial arts studio, online/ tv workouts, community centers and gyms all offer a variety of Zumba classes.
Barre: Traditional Barre workouts stem from the beautiful art of ballet, they are upbeat and offer a full body workout that is challenging and fun. On average you burn a total of 500 calories each workout! There is also a floor barre option that is usually fused with yoga, it offers uplifting principles and offers an atmosphere that totally reduces stress! You literally sweat it away!
Pilates: A great way to build lean muscle and gain control your core. If you know one thing about someone who practices Pilates regularly they are in overall great shape! Developed by Joe Pilate, Pilates integrates breath work that differs a bit from yoga but it does reduce stress all the same. Gives a full body workout and it’s a lot of fun! Great for spine and core health! Catch a class in studio, online, on tv or in a community center or gym. So many options.
Biking: So many options here. Outdoors! Yes! Indoors at the gym! Yes! or take a very upbeat competitive soul cycle class or jump on your bike in the gym or at home and take a class in the comfort of your own home, tour Italy! There are so many options! It’s lots of fun! Your mind will get lost in a good way!
Step three: Meditation. I was too jittery and had too much anxiety for meditation. I used to be the person that would roll up my mat before the end of a yoga class and run out before the final resting pose savasana. I could not bear the silence and being alone in my own thoughts. In yoga savasana is often said to be one of the hardest poses. All you are doing is laying flat on your back in relaxation. My anxiety in the silence was overwhelming to me. My thoughts raced. Even closing my eyes was too much. I would just skip it and leave immediately, if I ever did go to yoga back then. Once I was in yoga teacher training many years later, the importance of mediation practice was explained to me. So many thoughts are entering and exiting our minds constantly throughout the day. How do we know which ones are important? My giving ourselves a few moments of clarity. We allow time for our thoughts to clear and once they re-enter we have time to re-evaluate which ones are important.
How to start mediation practice as a person with anxiety.
I move first, before Fibromylagia really took over my energy levels with chronic fatigue. I used to have lots of energy that was stagnant. I needed to move first. I would exercise or practice power yoga first, then mediate. My bodies nervous energy was released and my mind was more clear and ready to receive the practice.
I do guided mediation on my worst anxiety days, If I leave myself to guide my own practice on a really overwhelming day the likelihood of success is not very high.
My goals are small, it’s really daunting to aim to practice 30 minutes of mediation in one sitting a day. Especially if it’s not your practice. Start with 5 minutes a day! If you find that successful increase it each week by 5 minutes or however you see fit to pace it. If increasing by 5 minute increments is too much, try 2 minutes instead.
Time! You have the time trust me! Stop endlessly scrolling through your phone. Set your timer and breath. Down load insight timer on your phone, down load audible get some of their guided mediations and DO THEM!
Step four: Pick up a hobby. Try starting a hobby like reading, painting, sewing, knitting, weaving, flying kites, doing puzzles or collecting bottles. A hobby can be very therapeutic and keep your mind in the present moment.
Non Pharmaceutical Anti- anxiety medications!
Cannabis: My favorite supplement for anti-anxiety! My Soul CBD oil drops! As I had stated before anxiety sometimes runs in families. My sister and I are both using My Soul CBD for our anxiety. I am using it for many other reasons as well but, she is also using it for her anxiety management. The CBD oil is organic, third-party tested for quality assurance and it’s THC free! The CBD tincture is flavored with essential oils and they taste amazing, the flavors include peppermint, orange and lemon lime. Lemon lime has been my personal favorite so far. If you are buying the 1500mg bottle 0.33ml equals to 16.7mg of CBD isolate. My current regime is 50mg of CBD oil daily. I take 16.7mg under my tongue at 10am, 2pm and 10pm along with my seizure medication at 2pm and 10pm daily. My sister purchases the 500mg bottle and takes 1 full dropper daily equally to a total of 16.7mg of CBD isolate daily. I have Epilepsy and Fibromylagia so my needs differ from hers as far as dosing goes. My Soul CBD just released a sleeping aid that has 25mg of CBD isolate along with Valerian root, Passion-flower and Pepper and 5mg of Melatonin. If you’d like to try this product, I have an affiliate link you can go to under my resource section to shop this great product!
MY Soul Sleep Aid 25mg CBD isolate
Orange Flavor Pure THC free!
500mg CBD bottle 16.7mg CBD per dropper!
Kava Kava : Is a herb sold as a tincture, tea or capsule. People often use it to boost their mood, calm anxiety, improve sleep and reduce pain. Some have described its effect as euphoric much like the effects of alcohol. Kava kava has been known to be more effective for women than men, more effective in younger patients and more effective for people with severe anxiety verses mild.
Valerian root: Similar to kava kava, sold in the same form, tincture, tea or capsule form. Most often used for sleep and often mixed into teas that are made for the function of improving either sleep or mood. Valerian roots action on the brain is increasing the Gamma aminobutryic acid (GABA) receptors, this regulates nerve cells and calms anxiety. The pharmaceutical drugs Xanax and Valium play similar roles in the brain with GABA receptors. Interesting right?
Chamomile Tea: Healthline produced an article that states ” Chamomile is commonly regarded as a mild tranquilizer or sleep inducer”. My mom used to prepare Chamomile tea for me as a kid with a little bit of honey and it would give me a great nights sleep. Even as an adult pouring a cup of Chamomile tea has a very relaxing benefit. Anything that makes you feel relaxed enough for sleep of course is a win. Try pouring yourself a cup when you are feeling overwhelmed. The tea taste delicious. Chamomile reduces inflammation in the body and improves digestion, its non habit-forming. Very inexpensive and readily available to use. Overall a very safe to try.
There are numerous options when it comes to prescription anti-anxiety medication. Just remember from the beginning when I stated that even anti anxiety medication can cause anxiety. Two issues are at play here when I mention withdrawal. Withdrawal anxiety is when you no longer need the medication and wish to get off the medication. The weaning process may produce more anxiety for you or an upswing of symptoms. Or withdrawals due to a habit that is being formed from taking the medication either by abuse/ over use or the body is becoming dependent. Talk to your doctor about the severity or risk of habit forming potential of the drug you are trying and about your family history. My Neurologist had prescribed me Xanax for anxiety and it caused me more harm than good. My seizure activity increased, I was heavily confused and had severe memory loss the times that I took it. After trying it 2 times, I discontinued using it. I do have Ativan which is for seizure rescue use and I use that on rare occasions to get cluster seizures under control. Ativan is also used by many people as an anti anxiety medication. I kept in contact with my doctor how I felt the times I took the Xanax. She knew right away it wasn’t for me. Always communicate to the doctor prescribing you medication on how you feel about a drug and do not just accept that is how you should feel, if it’s past a certain point and you should start feeling better by this time and you aren’t then it’s possible this isn’t the drug for you. Not every drug works the same for everybody. You may need to try a few medications first. Always use a medication as prescribed by your doctor. Exactly how it is prescribed! especially anti-depressant, anti anxiety or mood stabilizing drugs, I can not stress this enough! A doctor can not determine if your medication is working or not if you are not taking your medication properly. In nursing we are taught the Right’s of medications. The right patient, the right time, the right dose and the right route.
I always encourage people to get the help they need without fears of stigmas. If you have never been a medication person or you have fears about what others may think of you for needing anxiety medication. Firstly it’s your private medical information, you don’t need to share if you don’t want to. Secondly if you need to take medication to get well, that is what needs to be done. I recommended talk therapy and counseling to everyone with and without medication use who struggles with anxiety. If you like alternative medication. Medical Marijuana and CBD oil are now being prescribed by doctors all over the country, look up the laws in your state and see how you can obtain your medical Marijuana card. The chemical component THC in Marijuana can sometimes have a similar effect on the brain ( depending of the Marijuana used) that may cause more anxiety like some people on anti-anxiety medications. Finding the right medication is a science. It may take some time. Be patient.
You can also cut out all the personal medication trials if you are doing the prescription drug route and look up a company called Genesight. Genesight offers Genetic testing to provide you and your doctor the best information available to you based off your bodies genetic response and tolerance to medication without having to go through the hassle of trial and error. This is available to not only anxiety medication but also behavioral medications and antidepressants. Information will be provided in the resource link. I heavily suggest taking this extra step for your mental health.
Talking to a family member or spouse may not help when your anxiety has come to a point that it’s overtaking your life. Perhaps outside help is necessary. It’s also good to have someone to talk to that is not emotionally involved in your situation in any way. They can give some feedback and suggestions, offer a set of listening ears and some compassionate support. A therapist is also a professional . What you speak about together is completely confidential, if you have had difficult experiences in the past or present and you are having a hard time with them. Your sessions are completely private. The only time your information is shared is if you are a threat to yourself or others. In addition to one on one therapy many therapy offices or mental health clinics offer group therapy sessions. I suggest both talk therapy modalities. One on one is good to get your personal story shared and perhaps somethings you wouldn’t want a group to know or be involved in. Obviously the point of having a group is sharing but sometimes we can all be a bit shy or have fears of over sharing. Group therapy shows you that you are not alone. Everyone struggles. Life is messy and we all go through different problems. We can all connect on some level to each other through these problems and circumstances. Perhaps you can even be there to support someone else through a tough time every once in a while!
Find the right anti anxiety medication through genetic testing with Genesight
All the information I have collected is only to share my personal opinion and story in order that it may benefit you personally. I was not asked by any of the companies I listed to mention them or was compensated in any way. I do have an affiliate link with My Soul CBD oil, I was not asked to mention them here on my blog.
If you enjoy following my blog please give my instagram a follow @namastehealth._
I hope you find this blog beneficial and uplifting ~ Namaste~
It’s your first baby and you are super excited! Or this is your second baby you have been trying for or it’s your third baby and you have this down to a science. You are well prepared. Or at least you think. Maybe this baby is your rainbow baby and a lot of emotions are rising during your pregnancy or even the planning or getting pregnant in the first place. Perhaps this baby is your first and you hadn’t planned this baby at all. Whatever the circumstance. I promise you. Married. Unmarried. Planned or Unplanned, pregnancy will leave you feeling absolutely in love and ready to take on any challenge for your baby yet at the same time scared of everything for them. You’ll feel pure joy some days and other days you’ll say to yourself ” how can I do this?” Am I ready to be a parent? Will my baby have all it’s fingers and toes? What will we do about money? Can I do this on my own? Pregnancy is hard enough making a little human being. This is pressure enough. There are certain pressures that are placed on us in society that are absolutely overwhelming. Post partum depression is very real in our society. I feel it’s even more of an issue now that social media is so alive and well. Highlight reels depicting mothers who have gained very little weight posting already visible abdominal, pictures 2 days post baby saying they lost all their weight and just feel a little bloated and can’t wait to get back to lifting regiment, their babies are perfectly healthy not one complication exists, baby is clothed in expensive crap, the mom never returns to work and the father of the child happens to be in all the pictures. Everything seems so perfect right? Let’s talk about some old and new topics and lay some silly notions about how we are supposed to feel during pregnancy and child-birth experience or how we should allow ourselves to feel.
You will gain weight / or may not gain a lot of weight.
It’s necessary for a woman to gain weight during pregnancy. Depending on your size and weight prior to the start of pregnancy that will help you understand how much you should gain. It’s suggested that normal weight women to gain an average of 25 to 35 lbs in pregnancy. The range is lower if you are obese and more if you are underweight pre-pregnancy. My first pregnancy I gained 90 lbs. Wow that was extreme right? I did gain an extreme amount of weight. What you didn’t know is that I was under my natural weight when I became pregnant. I had been prepping for bikini competitions and strictly dieting for months and months prior. I still gained way too much weight with all that being said. I lost all that weight after my baby and got into the best shape of my life after that. I got pregnant again and gained 60 lbs. I have lost 45 of those 60 lbs. I haven’t gotten back into the best shape of my life again yet due to other health issues but my mindset is already there. 15 lbs is not going to hold back any of my joy. I am not encouraging anyone to go out and gain a ton of weight during pregnancy but I am encouraging you to realize that scales should not define how you feel in pregnancy.
Everyone is created differently. Our genetic make up is so complex and each and every one of us is unique. Every woman’s body should be appreciated. I think as our culture is becoming more body positive towards bigger women we are starting to shame women that are naturally slim. Body positivity is every BODY. Some moms won’t gain much weight. Their bodies don’t need the same fat stores as others do, they have different life styles, their needs are different. I have seen numerous times on Instagram mother’s being questioned as to why they aren’t gaining when they are tiny or when they remain in fantastic shape while pregnant. Even if a mother isn’t gaining for a specific reason other than genetics and pure luck, we have no right to police others on those topics! You also have no idea if a mother is having health complications of her own, struggles with body image issues or has depression.
Stretch marks, they were described to me as like one of the worse things in the world by other women. I was a woman who prior to having children had not one stretch mark on my body. When I mean not one. I mean literally! I once had a panic attack after a bikini competition because I thought my water intake caused me to get a stretch mark. How vain! Now I am covered in them! From shoulders to knees. What I learned about stretch marks is
They aren’t that scary, they do not harm you physically in any way.
Buying expensive oils does not necessarily prevent stretch marks, stretch marks are caused by rapid weight gain or loss in a short period or time. The elasticity of your skin is involved in this process therefore, creams and lotions have nothing to do with improving the elasticity of your skin. With this in mind it comes down to genetics and cortisone levels ( a chemical produced by your adrenal glands). What you can do to help is stay well hydrated, eat a well-balanced diet and exercise. This maybe prevent/ limit stretch marks by preventing undue stress levels and keeping your overall health well during pregnancy.
Those stretch marks are so beautiful to me they changed my body forever. I will die with those marks on my body, whether my children remember everything I did for them or not those marks are like tattoos. I love them. I will never look to remove them.
Working while pregnant.
I will have to warn you, it’s not like the movies. Being pregnant at work is not a hall pass to put you feet up and rest. Unless you have great co workers. I was working full-time as a nurse in a nursing home with my first pregnancy and even with my baby belly popping I was being asked all the time to lift and transfer patients because I was known for being strong. ” thanks everyone.” Several days I vomitted into my hands and scrubs instead of my nursing cart while doing my rounds. I was left doing lots of 16 hour days because 3-11 nurses or 11 to 7 nurses weren’t showing up etc. I chose to go for another job that one wasn’t working out. I did not want to be discriminated against for being pregnant at my new job interview so I hid my pregnancy under a big shirt, I didn’t want my future maternity leave to be a reason for them not to hire me. This was a mistake later in my pregnancy. While I was lifting a patient I started to bleed profusely on an overnight case, I was working in home health at the time and could not leave because no one was aware I was pregnant. That was my fault. I waited until the end of my shift to leave go to the hospital and check on my baby. I was very emotional for hours waiting to see if my baby was ok. By my second pregnancy I learned so much about working while pregnant and here are a few things that helped me along the way.
A few tips for a better work day.
Always bring snacks, don’t catch yourself getting hungry or having to eat overly sweet or salty foods while pregnant. Always healthy quick foods if you don’t have the time to have a meal.
If you work in health care or a job where bad smells can make you feel very sick, having peppermint essential oil on you in your bag to smell every once in a while for a little aromatic reset really helps. Trust me.
Call out when it’s necessary, do not call out for BS things. Save your sick days and do what’s right.
If you have a lunch break, put your feet up during the break! It helps with the edema! Get a good pair of supportive shoes, don’t worry about fashion at this time.
When you are exhausted and need that 2nd coffee, wash your face with cold water and do some light stretches to wake yourself up, drink your water girl !
When you prepare to go on family leave, give yourself the maximum allowed time available. Prepare your disability paper work online as soon as you are allowed to, this paper work takes a long time to go through, you don’t want to have the hassle of worrying about monetary things during your postpartum period. Even if you have a healthy uncomplicated pregnancy life doesn’t always hand us the opportunity to relax and get some down time. Perhaps you recovery quickly and are feeling great, you can take that extra time to spend with your partner or treating yourself. You may also need more recovery time. Not everyone progresses the same when it comes to recovery. If there are complications, you don’t need to worry. The time has been alloted for you. If you chose not to go back to work after having your baby that is good too!
I encourage everyone that is a first time mother to attend the birth classes that are offered. Look into all your options. Water births, getting a Doula (a Doula is a birth coach that encourages women during the birthing process and postpartum they are known for a high success rate in completing a birth plan as planned) Having a Midwife deliver your baby versus having an Ob Gyn. Benefits of having a home birth vs hospital birth. C-section birth vs vaginal birth. Gather all your information. Start manifesting what you see for your new family. Locate the best professionals you can find. Meaning if you want a home birth, find the best qualified Nurse midwife in your area. Ask around. Talk to all different women about their birth experiences. Tour the hospital you’ll have your baby in. It’s your experience. Birth is special! If you are having a high risk pregnancy and having a C- section but wanted a more natural feeling to your birth ask about a gentle C- section. I had a gentle C-section with my 2nd daughter and it was a beautiful experience. In a gentle C-section because it’s scheduled there is time to lower the curtain allowing the parents to view the baby coming out, then baby is cleaned and placed on their mother’s breasts for some skin to skin. My husband was able to cut my daughters cord. It was truly a nice experience compared to the emergency C-section with my first daughter. Whether you chose to give birth outside in a tent with a Midwife burning sage or get an epidural and have an Ob Gyn deliver your baby in the hospital. Birth is still birth. No woman should ever be discredited for the route in which she has brought her child into the world. Our end goal is to have healthy babies. I am one of seven children. My mom had two C- sections and five vaginal births at home in our livingroom. She had intense back labor with these hard-headed kids for over 24 hours a piece, I swear. She is one strong mother. She had them without so much of a peep most of the time. I cut my little sisters cord, which is totally awesome. It was truly an amazing thing to experience. In nursing school when we did the emergency birth scenario, I did the entire thing so quickly. My professor said, it’s like you’ve seen or done this before laughing. I told her “oh yeah my mom had my siblings in the livingroom.”
Home birth was something I had wanted for myself, I soon realized I wasn’t cut out for the task. After talking it over with my husband who was supportive of any route I chose. I decided on the traditional route. Looking back I am more than happy I didn’t have a home birth. Everything did not go well. After over 32 hours of labor. I needed an emergency C-section. I hemorrhaged with my first and needed two blood transfusions. Everyone is different. Everyone’s pain level, personal level of comfort and family support systems are different. Some women are weak and sick through out pregnancy the thought of battling hours of draining labor is daunting other women feel beautiful and ready to take on the world when they are pregnant empowered and very well. It’s important not to judge other people’s choices.
1st baby 1 month before birth
2nd baby 2 weeks before birth
Supplements I took during pregnancy or prior to giving birth.
Find a good Prenatal vitamin with DHA and iron.
Vitamin D3 2,000 iu daily throughout pregnancy
Pre birth prep (targeting tissue healing post C- section)
Vitamin C– ascorbic acid is involved in all phases of wound healing, it aids the synthesis of collagen in the body to build new tissue.
Collagen –great protein source, increases elasticity of the skin and improves gut health .
Molasses – black strap molasses is known for increasing your iron after giving birth. blood loss causes iron depletion, this will help increase your red blood cell count.I had a low RBC count throughout pregnancy and I started taking black strap molasses in orange juice a week prior to giving birth. My RBC’s were finally normal when I did my pre-birth check in and remained normal even after the surgery! I was super thankful for this!
Be careful with too much iron supplementation. If you are having constipation during pregnancy. Constipation is common in pregnancy. Only supplement at times where you know you are deficient and always ask your physician about the safety of supplements, especially in pregnancy!
Use the nesting energy!
The extra energy that you have to do random things like rip boxes of clothes out and go through them or clean old cupboards and re decorate is called nesting. Do those things. As you can see in both photos I was feeling my nesting phase. While you are feeling that way, try to prepare some nice home cooked meals for yourself that you can freeze and have them reheated after the baby is born. Nothing is better than a good home cooked meal after having hospital food for a few days or take out. You’ll need some nutritious wholesome food and some of your favorite foods. If you are the breast-feeding try to avoid making meals with a lot of beans, brocoli and kale until you see how your little ones tummy is doing. Pack that hospital to go bag early. I had high blood pressure and I had a few scares where I may have needed to have my 2nd daughter early. I had to go to the hospital a few times. I was happy the bag was already packed. I didn’t pack my bag well the first time around because I planned to an uncomplicated vaginal delivery and thought I won’t need anything. I’ll be home about two days time. I was gone a whole week.
In my bag I packed
Contact solution and case ( yes something I forgot the first time)
My own shampoo, travel size body wash, tooth-brush and tooth paste, having your home stuff makes you feel better, deodorant, dry shampoo and body lotion . the hospital stuff is really greasy and heavy
Multiple changes of clothes and no not clothes in my size before I was pregnant. My pregnancy clothes.
Dandelion root tea – helps reduce swelling and water retention ( important, this was my 2nd baby and I knew full well about my milk supply and about supply and demand, I do not suggest using this at all for mother’s with supply issues, this can reduce your breast milk supply!)
Mother’s milk tea this increases your milk supply! get it!
Babies clothes, hats, socks, mittens, blankets.
Belly bandit C- section support panties- I started wearing this day 2. I was up walking around like crazy back and forth to the NICU to breast feed my daughter. This is also available for mom’s who have vaginal births. The extra support helped me feel more intact while walking around.
Don’t leak your nudes.. Wait what?
You are in charge of your personal information. When it comes to having a baby whatever information you chose to share with others is entirely up to you. You are your own media link. Every has their own opinions from how to carry your baby, what to eat, how to exercise, how to dress, act, sleep, stand, poop you name it! When you are pregnant people have so many things to say. Most everything is out of pure love and excitement for the new earthling but for a new mom with all her own worries, it can be quite overwhelming. I found a simple solution for the opinion problem, it’s easiest just not to share sensitive topics with people. I learned the less you share the less someone can have something to say about a topic. It saves you emotional stress and aggravation. As we all know pregnancy is a very emotional time. It’s not rude to share less. After all it’s only important we share our deepest thoughts and feelings with the people we love the most.
What exercise plan should I follow?
There are so many exercise programs to follow and with clearance from your doctor you can continuing enjoying most of the things you did to stay active prior to getting pregnant, through out your pregnancy. During pregnancy important not to push yourself or looking for achieving personal records. Pregnancy is also not the time to be losing weight unless instructed by a doctor for health related reasons. If you lift weights it’s not time to get the heaviest dead lift. If you practice yoga, you need to keep in mind that a woman’s body is easily over stretched during pregnancy because of a hormone called relaxin. It loosens the ligaments and joints in the pelvis to prepare for delivery, this can be a pleasant surprise getting you into some great splits in your practice but you won’t realize you have gone beyond your edge. So be careful not to over stretch. Yoga is such a great mind-body connection that can prepare you and your baby for a successful birthing process. I practiced yoga religiously throughout my 2nd pregnancy and meditation, my daughter had health complications and that practice saw me through a lot of my emotional discomfort.
If you haven’t maintained an active lifestyle prior to pregnancy and want to make this an opportunity to get healthy. I would suggest starting with prenatal yoga classes and walking. Getting outside in fresh air, soaking in the sun’s readily available vitamin D. Even walking on an inclined tread the mill for 20 to 30 minutes a day can be beneficial. Benefits of walking are go beyond maintaining a healthy weight. Walking boosts your mood, controls blood sugar levels, helps with aches and pains in legs, controls blood pressures and helps move labor along (once you get to that point.) If you are a mom that has been lifting weights or has been active and doesn’t know where to take things now that you are pregnant. I have something to share with you.
I found the perfect workout guide for pregnancy and postpartum recovery. I really wish I knew of theses ladies when I was pregnant with my children. These ladies aren’t just pretty fit women on the internet selling workout plans ( be wary of that especially when pregnant) they are trained professionals that really put loads of work into making a pregnancy training guide called Expecting and Empowered comprehensive Pregnancy and Postpartum workout guide. Created by a registered nurse and a physical therapist you are in great hands. I’ll include their information below under resources so you can take a look at their amazing guide.
I highly suggest baby moons. If it’s your first baby try to get away before it’s too late to travel, to a country or place free of the Zika virus. Mosquitos are carriers of the Zika virus it causes major neurological damage to babies in utero. I wan unable to travel to Mexico with my husband while pregnant with my second daughter for this reason. If it’s not your first baby. Getting out with your significant other for a few uninterrupted hours alone can be amazing. You may or may not be in the mood for anything super romantic but even if you get to spend a night away, perhaps you’ll get some better sleep away from the kids. Before our first daughter was born some of my favorite moments was actually when my husband and I who were both working nights at the time, totally drained would go to sleep together it doesn’t seem like anything super amazingly special written down but it was, we got to hold hands and fall asleep together uninterrupted by children screaming at us to wake up and make them something to eat. It was awesome. Do the baby moon, mini vacation, run away! Do it!
Involve your spouse as much as possible.
You are the one that is pregnant and making the baby so twenty-four seven you are with the little peanut. You are developing this in separable little bond. Your babys heart is beating just underneath yours, something your husband or wife is missing out on. Not that their roles are any less or more than ours but it is different. It’s important for everyone to feel included. I am extremely blessed to have a husband that is all hands on deck during my pregnancies, he has held back my hair when I’ve vomited everywhere. Cleaned me up. Put me to bed like a little kid. He has gone out and brought me all the weird food I’ve craved in pregnancy and dealt with a whole slew of emotional melt downs. Somethings I’ve done to try to make him feel more included in the whole pregnancy process.
Attend the Ob appointments– my husband came to every one of my 1st daughter’s ob gyn appointments he did not want to miss any. This was a great way for him to be included and fully aware of our plan of care and the staff of doctor’s. It’s also great to get a full family health history as a couple.
Attend a birth class– have your spouse attend a birth class with you a great opportunity to learn together.
Talk about how you want to raise your child – some conversations you don’t always have at first are about religion, are we religious? under what religious practices are we raising this baby? it actually changes somethings like baptism and conversations with extended family, it’s good if you guys discuss it first and you already know where you stand together on a topic.
Skin to skin- after you or your spouse feed the baby place the baby naked ( if you are brave) on your bare chest and wrap both in your shirt or blanket. The baby hears your heart beating, the warm of your skin and feels very calmed.
Postpartum depression prevention plan
Make a postpartum depression prevention plan, either in your mind, say it out loud or write it down. Think of ways to check yourself or make others aware of ways to know when you are not well. Post partum depression is scary and isolating. It doesn’t matter how many babies you have had before it’s something you should always check yourself for.
What is my red flag?ask yourself what your red flag is, we have all been depressed but what is your red flag specifically? for instance I knew I was really depressed when I no longer wanted to eat my favorite foods, do yoga or take a shower.
Talk- speak to someone as soon as you start having feelings of sadness or anxiety. Don’t be ashamed of your feelings and know it’s perfectly normal. If talking to family and friends isn’t helping talk to your doctor. I recommend both!
Get outside- getting some fresh air and some sunlight on your face after being cooped up inside the house with baby all day is very refreshing, even if it’s just to steal a few minutes alone.
Self care- Self care in this time frame is so limited but speak to your significant other, tell them what your needs are, make a simple plan to just do 1 special thing for yourself. It can even be a face mask done at home and a hot tea!
Therapy– family and friends may not be enough and therapy can be necessary. Attending a group can be uplifting and you can see you are not the only one struggling.
Medication I would suggest therapy together with medication. Never be ashamed of having to take medication for depression, if that is what you need. It’s needed. Don’t allow stigma’s to prevent you from getting the right help.
Natural mood boosters My Soul CBD oil for anxiety relieve and insomnia. It’s THC free and third party tested. Vitamin B12 is a great mood booster. Vitamin D3 something everyone seems to be in deficient in these days will help with feeling depressed and having low energy levels. Exercise to boost your mood. Eat well. Drink water. e
Meditation – allows us to refocus our jumbled thoughts, slowing down our brain, our worries become less. Meditation increases our memory, improves our sleep, mood and promotes a sense of wellbeing.
Pelvic Floor therapist – Clearance to have sex within 6 weeks after vaginal birth and 8 weeks after for C- section post partum can be an overwhelming thought it is sometimes not enough time to get our pelvic floors back together. We may be eager to get back in the game but our bodies may not be. We have created humans and either opened up enough to expel them out of our body or been cut open to do so. It’s extreme! Painful sex can be something that is contributing to a new mother’s post partum depression. Sex should be something everyone enjoys. So make sure you talk to your Ob Gyn about painful sex after birth and look for a pelvic floor therapist to get your sex life back on track. ( we know babies do their best to stop you anyways 🙂 Do your kegels and pelvic tilts in the mean time and lube up or take a longer break from sex if you need to.
Help with baby- if your baby had health complications and you are trying to do it on your own. You maybe seriously burnt out. Look into having a nurse come into your home to help you out with some of the medical care. Speak to your insurance company and see what they cover. You’ll be able to have your eyes on baby at all times if thats what you want but maybe you need your hands free for a few other things. Having a medically needy child can be very hard on a mother’s emotions and having a small break to collect yourself before getting back into the swing of things can really help.
I wish you and your new family lots of blessings in this up coming year. I hope you found my blog helpful in some way. ~ Namaste~
This article is made just for information sharing basis only, sharing somethings I found helpful during my pregnancy journey. As always before starting any exercise regime, new supplement or medication consult your physician ( especially as a pregnant or breastfeeding woman)
The amazing exercise guide I was telling you about!
” Failure will never over take me if my determination to succeed is strong enough.” -Og Mandino
Mind Over Matter.
Last week I interviewed Brigida she is a young woman living with Moyamoya. Moyamoya is a rare neurological condition. Brigida endured the hardship of not only recovering from the strokes her rare condition cause her but she also went through numerous brain surgeries in her young life because of it. ( please see part 1) I asked her a few questions today about her recovery and about her last brain surgery. Brigida briefly answers some questions related to those events below.
Me: What is the one thing you could say to encourage another Moyamoya patient?
Brigida: “ Have faith and do not give up!”
Me: What do you feel has been the greatest success in your health and recovery over the years?
Brigida: ” Honestly my mentality. Alway’s thinking positive helps me to get up and overcome whatever is bringing me down that day”.
Me: How many Brain surgeries have you had over the years?
Brigida: ” Two by-pass brain surgeries and probably about four brain surgeries that were done without opening up the sides of my head.”
Me: Is there anyone or specific thing that pushed you through all of this?
Brigida: “ The person that pushed me through my last and worst surgery was my son. Every night I would read him a bedtime story. I woke up from that surgery unable to read, write or speak. He came up to me asking for me to read him a story. I wasn’t even able to speak to him. My mother had to tell him I couldn’t read to him. He was the person that pushed me through. I told myself, I was going to read to him again.”
Brigida was motivated to get back to reading to her son. With that goal in her mind success was the destination. Not only does Brigida read, speak and write again. She dances. When asked about her plans to stay healthy for her future. She included her career as a Zumba Instructor. She said dancing really relieves her stress. She literally dances the stress away and high blood pressure! She has been managing her blood pressure naturally through dancing and healthy eating. She goes on to say she gets regular medical check ups for Moyamoya, that consists of a yearly MRI. Brigida only receives an angiogram if she has any symptoms, such as numbness or weakness to a limb, confusion or slurred speech. Brigida’s outlook on the past is mature and mindful. Not a hint of sadness evolves during our conversations. She looks forward to a healthy future.
Brigida New Year’s 2019 with her 3rd Child
Get Your Health Back on Track!
Nothing is in our control. Brigida’s situation wasn’t any different. Only Brigida’s state of mind was in her control. She had a good outlook. This is what separates her from anyone else in my mind, the minute I couldn’t read or write that would be my wall. A woman who went from unable to speak, read or write. Is now able to functioning normally. No. Thrive. Why? Determination. Persistence. Mindset is everything! Now that Brigida is feeling well. She takes the opportunity to stay active and move her body whenever she can. She cares for her mental and physical health regularly. Brigida saw the other side. She felt the paralysis in her body, the inability to care for her own daily activities. She does not take those things for granted. If you have the opportunity to move your body. I implore you. Do it today! You won’t be sorry you did. Don’t miss out. I have a few things listed below that can help you get started.
No, this isn’t a smoking kills article. I hope in 2019 we have acknowledged that already and I don’t need to go into all that. A puff of smoke is the English translation of Moyamoya from Japanese. It’s a rare neurological condition. It’s most common in East Asia. Although there seems to be a genetic trait to the disease, it still has not been proven. It’s also possible that head trauma can cause Moyamoya as well. Risk factors are being female, having family members with disease, being down syndrome, having sick cell anemia disease, being of Asian descent and being young.
A puff of smoke is used to describe how blood vessels within a carotid artery appear when viewing the brain. When these vessels cluster together they block crucial blood supply and oxygen to the brain. The vessel clusters can cause an aneurysm or stroke. Patients can have seizures, mini strokes, developmental delays, severe headaches, numbness to limbs on one side of the body and face, difficulty understanding language and processing information. As you can imagine this disease is very rare and the complications and symptoms are so extreme. Now imagine yourself 16 years old with your whole life ahead of you and without warning having your first mini stroke! That was just the beginning of a long journey for Brigida. Before I share her story I have key medical terms I’ll share with you so you don’t get lost along the way.
Key words and terms to remember along the way.
neuro– relating to the brain
angiogram- a medical procedure used to view inside arteries and veins ( normally in the heart chambers but not always)
angioplasty – a minimally invasive procedure to widen narrow or obstructed arteries or veins
the left side of the brain- controls the right side of the body
the right side of the brain- controls the left side of the body
TIA– transient ischemic attack also known as mini stroke the damage is normally shown on a CAT scan
CVA- cerebrovascular accident also know as a stroke
fistula– arteriovenious fistula an abnormal connection between and artery and a vein
femoral artery– the artery running along inside of your inner thigh/ groin.
If you met Brigida today, your first impression would be her smile. She is very beautiful and her smile radiates. She is very out going and has a pleasant attitude. She is care free and when asked about her medical condition she doesn’t speak of it in pain like most people would. She is a mother of three, a Zumba instructor and she sells Herbalife nutrional supplements and Monat hair products. Most importantly, she loves life.
If anyone has a reason to be depressed about life she does. If anyone has a reason to be thankful about life, you will after reading her story. I think you’ll come up with a few reasons, trust me. There is a saying that people create their own pain. That pain isn’t a physical pain, rather the perspective you choose to live in. Brigida could describe herself as stroke victim, disabled, moyamoya diseased, scarred, depressed, incapable, instead she is a warrior, empowered, and strong woman capable of handling the crazy health conditions life has thrown at her over the years.
The Teenage Years.
Brigida was a normal teenage girl. She was pretty healthy and played sports in high school. Brigida had high blood pressure but her doctor assumed it was hereditary as her father had high blood pressure so it wasn’t too much of a concern. Brigida began having heart palpitations in class and having to go to the school nurse when she was 16, almost 17 years old. Several times she had gone to the hospital but nothing came of it. At 17 years old Brigida was at home with her mother and her whole right side of her body became numb. Her mom called 911 and she was rushed to the hospital via ambulance. At the hospital doctors explained to Brigida’s mother that she had a TIA (ministroke). Unfortunately correct patient teaching was not completed and Brigida’s mother did not leave the hospital with a full understanding of what that really meant for Brigida’s health in the future. Brigida did have a full cardiac work up following her hospital stay. She had a holter monitor hooked up, which is when a continuous EKG is on your heart to check for palpitations or abnormalities with daily activities over several days time, she also had an ultrasound of her heart (echocardiogram) and was told everything looked great! Perfect! Brigida continued to live life as if nothing ever happened.
One day everything changed.
It was November 2007. By this time in life Brigida was pretty busy. At 22 years old She was already married and a new mother. She had a job and was working towards her career as a Liscensed practical nurse. Attending nursing school alone is hard, being a new mother and trying to study is madness.
One day Brigida was at work, she noticed something strange she was slurring her words and wasn’t able to say her own name! Thinking that was strange. She continued her work day. Following her work day she goes to nursing school. While at school her fingers go numb.Brigida had been studying strokes in school recently and these symptoms began to concern her. She now recalled what happened to her when she was a teenage and went to her Dean of the school and told her ” I think I am having a stroke. The Dean challenged Brigida and assumed she was trying to skip school. The Dean told her if she didn’t want to be at school she shouldn’t come. Brigida assured her she wanted to be at school. The Dean said ” sit down I’ll take your blood pressure, and it was 150/200! It’s even more dangerous when the bottom number is higher than the top. Brigida made arrangements with her husband for their son to be taken care of and set off for the hospital.
Brigida was in the hospital for two months. Brigida was taken off her oral contraceptives and her standing blood pressure medications while in the hospital. The right side of her face was paralyzed from the stroke causing a facial droop. Her right arm was partially paralyzed. Her treatment during her hospital stay consisted of controlling her blood pressure. Physical therapy and Speech therapy. Brigida’s language returned to her within 3 to 4 days of her stroke. Brigida is a bi-lingual speaker. Her first language is Spanish and her second language is English. She speaks both languages fluently. Brigida is often severely anemic on top of her blood pressure problems. Her anemia is often monitored as well.
Her blood was tested during her hospital stay and she was told she had Hepatitis C. Brigida was told about agressive treatment options similar to chemotherapy. She would lose all her hair and possibly her life in the treatment process with this new drug. She under went more testing to prove she had Hepatitis C. Thankfully she did not. Three blood tests came back negative confirming there was a misdiagnosis by the hospital for Brigida having Hepatitis C. In the midst of everything she was dealing with, Brigida was thankful she did not have to under go any therapy or treatments and that the misdiagnosis was caught.
Brigida wanted an answer to why she had a stroke in the first place. She was so young and relavitely healthy woman aside from high blood pressure. She did not receive a diagnosis from the hospital during her time there or clear reasons on why she had a stroke. Her case was considered very special and she was referred to St. Luke’s Roosevelt Hospital in NYC to a team of doctors lead by a Dr. Barenstein. She had her first consultation in New York and scheduled some testing. She was told to return if she had any problems in the mean time. Of course she did, in April 2008 Brigida had another TIA. This time she received lots of tests from the team of doctors in NYC. These doctors told Brigida she had brought Moyamoya to New Jersey, that is how rare this disease is. They fully educated her one her rare condition and suggested she have a stent placed in her left Carotid artery to provide adequate blood flow and oxygen to her brain. Brigida agreed to having the proceedure done. Her alternative was to continue to have strokes and possibly die. Or have surgery and possibly have a stroke on the table and die. Her options didn’t seem very appealing. Only one option had a more positive outcome for her future. Brigida’s family was very concerned. Brain surgery is a very big deal! We all know the saying to denote anything that doesn’t seem impossible ” it isn’t brain surgery” well this was. I asked Brigida some questions about how she felt in those moments going into surgery.
Me: What were your thought’s exactly?
Brigida:” I’m going back to work, I’m getting up and out of this”.
Me: What did you think about your son?
Brigida: “At that time, I felt like I needed to get back to him, I felt that made me stay positive, his dad was a big help,his family and our baby sitter at the time.”
Brigida mentions her family was consistentlyat her bedside during this time in the hospital.
Wow that is a great perspective on brain surgery. I would have been losing my mind. Brigida had been in the hospital for a while. She was one of the youngest people who this surgery has been done on. They went in and placed the stent into her carotid artery through her femoral artery. Remember our little site key? When Brigida woke from her brain surgery she opened her eyes to a team of doctors clapping and cheering for her. Amazing! Also a little scary. Brigida was doing so well she was allowed to go home just two day after the stent was placed. She was given a cane and instructed to not walk up and down the stairs too much and not to lift anything over 10 lbs. Although she recovered well from this surgery it was not the end of brain surgeries for Brigida.
The stent closed.
2008 held more ups and downs for Brigida. Nearing the close of that year Brigida had another TIA. An angiogram procedure was completed at the hospital and a decision was made to do an angioplasty. With much remorse Brigida’s physicians informed her that the artery was starting to close the stent. Brigida was told this was ” never seen before”. The stent surgery was ineffective. The angioplasty was completed and worked well for some time. Life continued. In 2009 Brigida was getting dressed and her left arm became paralyzed a first for symptoms on her left side, you know what this means? Remember what I told you about the brain? Her right brain is now being affected! Another TIA in the books for Brigida but this time affecting the opposite side of her brain. The side that had been fine. An angiogram was completed during this hospital stay. A mistake was made during the angiogram. unknown to Brigida once discharge she started to have a lot of pain in her groin. Severe pain. If Brigida was complaining about pain it had to be bad. She had an infection at the angiogram site as well as a fistula had formed from the technician accidentally puncturing her vein and artery creating a blood clot. This infection progressed to yet another hospital stay for a special wound treatment called a wound vac. A wound vac works with negative pressure and is attached to a wound to draw out excess fluid.
Once discharged for that ordeal. Brigida still needed to see her specialist. Brigida went to her specialist team in NYC they completed their own angiogram in the opposite leg of course and an MRI which revealed the Carotid on her right side also had Moyamoya she was told it can spread.
Brigida was informed that there was a high risk of placing a stent this time. The last stent did not work and was closed, the team suggested Brigida have a by pass surgery done. This was in June 2009. Brigida really didn’t consider this to be a big deal. Her thoughts were, they’ll go in fix what’s wrong and done. ” I didn’t want to make it a big deal in my head, if I did then I was going to freak out”. Brigida thought it over. Schedules were made. Brigida recalls her father even made a burial plot arrangement for her. She was laughing when she told me about it, she said some of the family wasn’t really as hopeful as she was about how the surgery would go. Brigida was told so many scary things about what could go wrong. She could “die on the table, stroke again, be a vegetable, etc.” One thing that bothered Brigida the most was having to shave her head. She loved her hair.
The doctor’s promised Brigida they would only shave the areas they needed to. I asked Brigida why it bothered her so much that she needed to cut her hair? Everything else was so extreme.
Brigida : ” What makes a woman beautiful is your hair, that is how I grew up my beauty was in my hair. Everyone used to compliment me on my hair when I was little”.
That makes perfect sense. I understand that completely, it makes me think of Breast cancer survivors it’s not always what the disease process entails but it’s also the feminine power that it can strip you of in its wake. . I think we can all relate to her thoughts. Brigida goes on to say that while the physical recovery was about 1.5 months. This surgery was more mentally challenging for her then when she had her first surgery.
As you can see so far Brigida’s life hasn’t been all cupcakes, unicorns and butterflies. She does have a positive mindset. When asked about her thoughts before going into brain surgery it wasn’t I’m going to die! I am pretty sure if it was. She would have died. That seems like an extreme statement on my part. Mindset is everything. We live inside our minds at every single moment we are alive. We don’t have a promised amount of days in life. If we spend our moments waiting for the next best thing. Our life may never happen. Take my Grandmother for an example she died of cancer at 65 years old. She struggled so much and I am sure I don’t know half the pain she went through but she was a pessimist. She saw life through worse case scenario all the way down to the weather forecast. It still bothers me she died at 65, that’s really young. Too young. Perhaps if she saw things in a more positive light she would have just enjoyed the days she lived more even if she never lived anymore days over 65. Do you catch what I am saying? Increase your life by moments, you really have no control over the days or what happens rather your reactions to those events. You can make your life easier.
Brigida’s story will be continued in next week’s blog.
Fibromyalgia is a chronic disease with many symptoms, sometimes it lays dormant for a while and patient’s experience ” flare ups” a time where symptoms become more dominant and overwhelming. This can happen when you have a surgery, become ill with another sickness such as a cold or flu, during your menstrual cycle and even during stressful or emotional times.
Symptoms of Fibromyalgia include, headaches, brain fog, memory problems, insomnia, muscle spasms, tingling and numbness to limbs, irritable bowel syndrome, intense muscle pain, pain that feels like growing pain in bones and joints. Patients with Fibromyalgia suffer from depression and anxiety disorders. Being in chronic pain can really wear a person down. Often times doctors don’t believe Fibromyalgia is “real”. This disease is invisible. Up until 2012 there was no physical evidence of this disease. No known cause, just theories and doctors believing this disease to be a psychiatric condition. I felt that Fibromyalgia was often diagnosed when doctors give up on a patient or refused to do further testing.
All that is changed thanks to Dr. Bruce Gillis of Epi Genetics. He decided that there had to be a specific physical clue to the disease. Dr. Gillis started a research program and found one particular thing in common with all patients he studied with Fibromyalgia. The similarity was the presence unique biomarkers of the immune system. He lays to rest the controversary of Fibromyalgia medically. Dr. Gillis confirms through FDA approved blood testing that Fibromyalgia is infact an immune system disorder. It’s truly physical, not just a fragment of your imagination.
I am not going to go into great detail about the specifics of the immune biomarkers, you can find more information on that at https://fmtest.com/
I already know I have Fibromyalgia, why do the testing?
Testing confirms a true physical aspect of this invisible disease.
This disease is chronic and consistently plaques a person with a variety of symptoms that can have similar patterns that fall closely to other auto immune diseases. It gives the patient peace knowing that a doctor has made the right diagnosis for them.
Physicians will take patient’s more seriously knowing fibromyalgia is “real”.
The test is FDA approved and covered by most insurances.
The test is extremely accurate, it is as accurate as HIV testing.
Having testing completed allows you to participate in Dr. Gillis clincial trial to cure Fibromyalgia. How awesome is that?
Testing may help patient’s filing for social security benefits.
The road to diagnosis.
When my Rheumatologist told me he thought I had Fibromyalgia. I was actually really mad about it. I thought great, such a BS disease, no cause or cure. Just a chronic condition that basically leaves you ignored by physicans. I was skeptical that I had the disease in the first place, I’ve been suffering from symptoms since I was 15 years old. Until last year (at 26 years old) no doctor ever knew what was wrong with me. This doctor diagnosed me before my blood work even came back. I was also concerned that maybe he overlooked something. I researched Fibromyalgia and the FM/a test came up. I looked it over and the next day I spoke to someone at Epi Genetics ( the lab where the FM/a testing is done) the person was extremely helpful and explained the entire process to me. First I needed a doctor to order the test for me. When I intially spoke to my Rheumatologist he would not order the test, he said he never heard of it and that is wasn’t necessary. I didn’t take no for an answer so I contacted my primary physican and he agreed to order the test for me. YES!
The staff at Epi Genetics contacted my insurance company once the order was received, there was no agreed upon amount that my insurance promised to pay. They said that they maybe would pay something towards it. I had to front the money for the test, it was 740.00 ( without insurance out of pocket the test cost 900.00 at the time). I ordered it. The test came in a little box with all the instructions and a test tube. I had to take the test tube to my doctors where they drew the blood for me. I packed the test tube as instructed and sent it to Epi Genetics via Fed Ex overnight shipping. The label and bag was already created, all I needed was a receipt. It’s important to know you need to send the blood out right away and never have your blood drawn on a Friday. The specimen would be ruined due to the lab not being in office over the weekend. I waited about 3 weeks and received my results via snail mail. My ordering doctor also received the results via fax. Any value over 50 is considered positive. I tested positive with a value 65. I felt relieved for sure. Through out the process, I was contacting Epi Genetics regularly to find out more information, ask about costs and the process of mailing and the testing itself. I even emailed Dr. Bruce Gillis and he got back to me. Epi Genetic’s staff were extremely helpful and pleasant during the process.
A few things you should know about the testing process.
A doctor needs to order the test for you, if a doctor will not do it. That’s ok, Dr. Gillis himself can order the test for you. You just need to contact Epi Genetics and tell them about your struggle.
You need to find someone to draw the blood for you. Lab corp and Quest in my area would not do blood draws for third party testing. Luckily my doctors office agreed to doing the blood draw for me. Call different labs in your area first and see who will do third party blood draws. Before you order the test. Tell them you have a third party kit and will handle the shipping process back to the lab. ( do not trust the lab doing testing to send you kit back, make sure you do it yourself)
My insurance paid for the test in the end however, it did take a long time to get my refund. A total of 9 months ( it was allot to pay out of pocket)
A payment plan can be made with Epi Genetics if you do not have insurance. Just know you won’t receive the kit for testing until ALL your payments are made.
If you found this information helpful please give me a follow on my instagram @namastehealth._
I was not paid or asked by Epi Genetics to review this blood test. I am not endorsed or backed by any of the sites mentioned above. Although I am an affliate of My Soul CBD they did not ask for me to post anything here. All the information I include is my personal story that I chose to share with you. I hope you find it helpful and perhaps you will consider completing the test for yourself. If you have any questions please ask.
It’s important to remember when you have new or worsening symptoms of Fibromyalgia whether testing is completed or not. You need to review each symptom case by case. Just because you have Fibromyalgia does not mean you can’t be sick with something else.I always encourage people to do all necessary blood work and exams to rule out other disease even if you have received a positve FM/a test. Fibromyalgia often co- insides with other auto immune diseases.
Everyone is always talking about CBD oil and it’s benefits. You’ll now find it at your local cafe being added to coffees and smoothies; the pharmacy has CBD at the register as edible gummies, oil ,even CBD infused water, smoke shops have it available to be vaped etc. I always thought it was some hype much like virgin coconut oil. Of course coconut oil works well for numerous things and is a great addition to your beauty regime as well as ingesting it. However, there is this running joke that you can basically use coconut oil for everything, this is where I was at with CBD. I figured it can’t be as helpful as everyone says… until I needed it.
First off let me explain what CBD oil is. CBD is a chemical compound found in cannabis. it’s called cannabidiol. Cannabis is the fancy plant name for Marijuana and hemp, just like bell peppers and tomatoes are apart of the nightshade family. CBD can be extracted from the stalks and seeds of hemp or be extracted from the buds of marijuana. CBD extracted from hemp has little to no THC present. THC is the active ingredient in marijuana that makes you feel high. CBD is legal for purchase and available in most states. In short CBD oil blocks the reuptake of certain neurotransmitters in the brain, allowing the neurotransmitter to be increased in the brain. This increase causes there to be more oxygen supplying the heart and aids in blood flow throught out the body, relieving anxiety and inflammation. Check out http://www.projectcbd.org for the specific neurotransmitters involved.
While CBD is legal and contains just trace amount of THC. You may not want to consume CBD in large quanities if you need to pass a drug test. Some tests maybe sensitive enough to assume that you are using marijuana. I saw something on the news one day that a truck driver was strictly taking CBD oil, he tested positve on his drug test resulting in being fired. I am using CBD regularly at the moment, I am not currently working as a nurse (due to health reasons) other wise I would seriously need to consider getting a medical marijuana card and making my employer aware of medical conditions just to be safe.
I tried several CBD companies…
Once I was aware of the benefits. I gave CBD oil a shot. My first purchase was from Blue Ridge hemp co. I purchased a headache/stress relief topical roll on, its packed with pure aromatic essential oils. I found some benefits and relief from my headaches. My headaches are a symptom of Fibromyalgia as well as frontal lobe seizures. I would massage my temple with the roll on and behind my neck and ears. The benefits would last about an hour before my headache would reappear. It was a great relief to experience some break from my headaches without using medication. After experiencing some kind of benefit, I decided to try Thought Cloud’s CBD full spectrum tincture. I found it gave me a feeling of euphoria, like 1 glass of wine kind of good (I rarely drink) and in about 20 minutes that would wear off and my chronic pain would hit me instantly. Concerned that there was more THC in the product than I wanted, I gave the bottle away. Months had gone by when I decided I would try the real good stuff, Charlottes Web is well known and promoted to me by my friends with anxiety disorder. I purchased a bottle from them. I tried the oil on several occasions hoping for some decrease in seizure activity or pain. I found myself awake all night long, not able to sleep. I spoke with someone in the company and they said, their hemp oil does include THC. I quickly stopped using it because I didn’t find a benefit. It increased a choking sensation that is an aura to my frontal lobe seizures. It may be that the THC in the product was interacting with my seizure medication in a bad way.
Aura definition- preceptual distrubance that is related to epilepsy. It can be an unpleasant, taste, smell or feeling.
After that I was convinced that CBD oil did not work, it was all hype. See! I knew it! A group discussion on epilepsy had several people raving about CBD oil. I was wondering why it doesn’t work for me! I purchased CBD dark chocolate coconut oil from Blue Ridge hemp co. I was taking it along with my seizure medication Toprimate. I found it was helping me quite a bit. The only down side to it was eating chocolate and coconut oil everytime I felt an aura. It is also only 15mg of CBD per tablespoon. It is delicious, if I were you I’d give it a try.
Eventually in need of something that worked a bit quicker and had a higher CBD concentration per serivng, I found a company, out of the blue. Very recently a friend from yoga teacher training posted a picture of My Soul CBD oil on her instagram. She said their oil was tested by a third party to ensure its quality. It’s THC free and with the guarantee of a good quality product, I couldn’t resist. I clicked the link and spun a little discount wheel. I received 10% off my first order. I purchased the peppermint flavored CBD drops in 500mg/ 30ml bottle. Please note that the bottle is 500mg but you are recieving approximately 16.7mg per 1ml. Simple no gimmic ingredients pure peppermint essential oil, mct oil and of course the best CBD isolate. I am currently taking 1ml 3 times a day. I am off my seizure medication right now due to having some future EEG testing completed where I need to be drug free. Just know that this product works for me. If you have epilepsy do not go off your medication (as stated above, I have a specific medical reason why I am currently off my meds) or make changes without speaking to your neurologist first. If CBD oil is already apart of your health regime, I would certainly recommend giving this oil a try. I have been ridden with anxiety from seizures that caused this choking feeling almost constantly, this product did remove that feeling for me and I am forever grateful. I’ve been sleeping better and feel more relaxed overall.
Do topicals work?
As mentioned before, I did find relief with my headache roll on from Blueridge Hemp. I think because of the esssential oil combination it is effective. I haven’t found much pain relief or benefit from using the massage oil or the body scrub. This is my personal experience however, If you feel you want to try them by all means do it. They are nice products aside from being CBD. I have a very intense chronic pain issue, it may relieve your sore muscles. It just doesn’t work for me.
Thank you for reading. My intention is to provide my personal opinion of these products and a fair overview on how CBD has benefited me personally. I wish you wellness.
~ Namaste ~
Rescources/ learn more.
Check out http://www.projectcbd.org for lots of great information and comprehensive over view on the way CBD works in the body.
If you enjoy my blog, give me a follow on instagram @namastehealth._
I am an affliate of My Soul CBD however, I was not asked to review the product by them. I was not sponsored or paid by any of the other products mentioned in my review. As always consult your physican before trying any new supplementation and check for drug/ food interactions with your current medications. Thank you- Danielle